We'll probably be looking at semi-monthly appointments with the oncologist in the near-term, which may space out to monthly appointments after a while if things are on the up and up. We won't really know that Nash has the skin-only, benign version of LCH until he's probably a year old.
Nash's oncologist has been in a really difficult position; he is dealing with a incredibly rare disease, and Nash's labwork has not been straightforward. At one point, based upon the recommendation of someone with more experience with this disease, the doctor was going to start Nash on chemotherapy. We are so glad that he took a more conservative approach. I know that many of you have been praying for Nash's caregivers and we are so full of gratitude for that. Your prayers have been evident in the wisdom and care exercised by Nash's team.
There may not be any posts until next week (when we see the doctor). My hope is that this becomes the most boring blog in the world. I might have to start writing about fantasy football or politics to keep readership up. Love to all.
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