Sunday, August 14, 2011

So...what's next? We'll see the oncologist again early next week for more labwork and a physical examination. The spot on Nash's face continues to look better and he remains symptom-free. Nash's GGT, the liver enzyme that has been abnormally high, came down dramatically on Friday; however, even after the decline it is still a high figure and because it is not uncommon for this disease to pop up in the liver (or elsewhere), the GGT will be monitored carefully along with other lab values for about a year.

We'll probably be looking at semi-monthly appointments with the oncologist in the near-term, which may space out to monthly appointments after a while if things are on the up and up. We won't really know that Nash has the skin-only, benign version of LCH until he's probably a year old.

Nash's oncologist has been in a really difficult position; he is dealing with a incredibly rare disease, and Nash's labwork has not been straightforward. At one point, based upon the recommendation of someone with more experience with this disease, the doctor was going to start Nash on chemotherapy. We are so glad that he took a more conservative approach. I know that many of you have been praying for Nash's caregivers and we are so full of gratitude for that. Your prayers have been evident in the wisdom and care exercised by Nash's team. 

There may not be any posts until next week (when we see the doctor). My hope is that this becomes the most boring blog in the world. I might have to start writing about fantasy football or politics to keep readership up. Love to all.

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